
Surveys/Research/Items of Interest
Note: HLAA Rochester Chapter does not endorse nor receive any financial or other benefit from offering members the opportunity to participate in research or survey projects. Please read the guidelines in any project carefully and completely and decide if you would like to participate. Be cautious about sharing personal information.
Hearing Research/ Items of Interest

The Ohio State University is doing a study to learn what people think about using gene therapy as a possible treatment for genetic hearing loss.
Click HERE to find out more about this paid study and to see if you are eligiable

Link to survey: https://redcap.osumc.edu/redcap/surveys/?s=FJYMAHA4N979MWN8
Accomodations for Deaf and Hard of Hearing, in the Workplace
"If you are 18 or older and are Deaf or Hard of Hearing, you may be eligible to participate
in a research study designed to collect the experiences of people seeking accommodations in the workplace. Contact:
Principal Investigator(s): Alisa Sheth, College of Health Professions, 503-352-7350, AJSheth@PacificU.edu
Research Team: Elizabeth Butcher, DHSc Doctoral Candidate, EButcher@PacificU.edu,
Dr. Wyatte C. Hall, University of Rochester
To complete the survey go to:
https://pacificu.co1.qualtrics.com/jfe/form/SV_2abWut0Y69Nn92K
Upon completion of the survey, if you live in the Rochester, NY area, you can provide your name and contact information to join in a focus group or interview."

From Johns Hopkins University

Title: Development of a Music Enjoyment Item Bank in Individuals with Hearing Loss
Purpose: Are you or someone you know interested in how hearing loss affects the
enjoyment of music? A research team at Johns Hopkins University is conducting a study
to explore this important topic.
Sponsor: American Academy of Otolaryngology-Head and Neck Surgery
How You Can Participate:
• Recruitment Criteria: Anybody with hearing loss
• Survey: A short, 10-15-minute online survey about your hearing and music background.
• Interview: Some participants will be invited to take part in a 40-minute interview
to discuss in more detail what music enjoyment means to them.
There is no monetary reimbursement, but your participation can help improve music
listening for those with hearing loss and contribute to advancing hearing aid and
cochlear implant technology.
survey. https://mrprcbcw.hosts.jhmi.edu/redcap/surveys/?s=KXPTTTJK8H7FPRNX
Questions? Email achern1@jh.edu and carar1@jh.edu
Study Number: IRB004112006/Principal Investigator: Francis X. Creighton