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Surveys/Research/Items of Interest 

Note: HLAA Rochester Chapter does not endorse nor receive any financial or other benefit from offering members the opportunity to participate in  research or survey projects. Please read the guidelines in any project carefully and completely and decide if you would like to participate. Be cautious about sharing personal information.

* HLAA Rochester Chapter Guidelines for Submitting Requests for Surveys and Research Projects.

Hearing Research/ Items of Interest

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 The Ohio State University is doing a study to learn what people think about using gene therapy as a possible treatment for genetic hearing loss. 

Click HERE to find out more about this paid study and to see if you are eligiable

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Accomodations for Deaf and Hard of Hearing, in the Workplace

"If you are 18 or older and are Deaf or Hard of Hearing, you may be eligible to participate 

in a research study designed to collect the experiences of people seeking accommodations in the workplace. Contact: 

Principal Investigator(s): Alisa Sheth, College of Health Professions, 503-352-7350, AJSheth@PacificU.edu

Research Team: Elizabeth Butcher, DHSc Doctoral Candidate, EButcher@PacificU.edu,

Dr. Wyatte C. Hall, University of Rochester

To complete the survey go to:

https://pacificu.co1.qualtrics.com/jfe/form/SV_2abWut0Y69Nn92K

Upon completion of the survey, if you live in the Rochester, NY area, you can provide your name and contact information to join in a focus group or interview."

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From Johns Hopkins University

​​Title: Development of a Music Enjoyment Item Bank in Individuals with Hearing Loss

Purpose: Are you or someone you know interested in how hearing loss affects the

enjoyment of music? A research team at Johns Hopkins University is conducting a study

to explore this important topic.

Sponsor: American Academy of Otolaryngology-Head and Neck Surgery​​​

How You Can Participate:​​ 

• Recruitment Criteria: Anybody with hearing loss

​• Survey: A short, 10-15-minute online survey about your hearing and music background.​

​• Interview: Some participants will be invited to take part in a 40-minute interview

to discuss in more detail what music enjoyment means to them.

There is no monetary reimbursement, but your participation can help improve music

listening for those with hearing loss and contribute to advancing hearing aid and

cochlear implant technology.​

survey. https://mrprcbcw.hosts.jhmi.edu/redcap/surveys/?s=KXPTTTJK8H7FPRNX

Questions? Email achern1@jh.edu and carar1@jh.edu

Study Number: IRB004112006/Principal Investigator: Francis X. Creighton

© 2025 Hearing Loss Association of America Rochester Chapter Inc. All Rights Reserved. 

 

Documents on this website have been compiled by the Hearing Loss Association of America Rochester NY as an information resource. The content is believed to be accurate at the time of posting; material is subject to change. Mention of goods or services in advertisements does not imply Hearing Loss Association of America endorsement; exclusion does not suggest disapproval. ​HLAA Rochester P.O. Box 1002 Fairport, NY 14450​​ Phone: 585-266-7890  Voice Mail

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